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Mended Little HeartGuide

Diagnosis 3 In The Connecting With Others Many parents and caregivers feel very alone when they find out that their child has a congenital heart defect or congenital heart disease. Mended Little Hearts can help you join a caring support network of other parents and caregivers who have had similar experiences. Here are some ways to get started: Find a local support group. Mended Little Hearts has local support groups across the nation for parents and caregivers of children with CHD. Please visit our website at MendedLittleHearts.org and click “Find A Group” for information about groups near you. You can also call 1-888-HEART99 (1-888-432-7899) between 8 a.m. and 5 p.m. CST and someone will be happy to help connect you. Local groups provide support meetings and educational programs, conduct CHD awareness events and work with local hospitals to help families who need support. Join our closed Facebook group and follow us on social media. Mended Little Hearts has a closed Facebook group, MLH CHD Chat, where parents, caregivers and people directly affected by congenital heart disease can talk with others who have had similar experiences. There, you can feel safe asking questions, expressing concerns and talking about your family’s experiences. Simply request to be added to the group on Facebook. Mended Little Hearts also has a public Facebook page, Mended Little Hearts National Organization, where followers can learn about new groups across the nation, national and local activities and new technology, research and treatments for CHD. We are also on Twitter@MLH_CHD. Take part in our Parent Matching program. Mended Little Hearts has a Parent Matching program that connects parents via email to other parents who have a child with the same or a similar heart defect. Parent Matching participants receive email messages of support from other parents. If they choose, participants also have the opportunity to complete a short training program that allows them to send emails of support to new Parent Matching participants whose child has a heart defect similar to their child’s. You can sign up for Parent Matching on the MLH website. Become a member of Mended Little Hearts. If you do not have a Mended Little Hearts group near you, you can still join Mended Little Hearts as a Member At Large to receive emails and news about Mended Little Hearts activities, webinars, educational materials and resources for families. There is no cost to join and the information you share is always kept private. You can join by visiting the Mended Little Hearts website or calling 1-888-HEART99 (1-888-432-7899). 1 General Information 2 Prenatal Hospital 4 Living With CHD 5 Forms 9


Mended Little HeartGuide
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