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Mended Little HeartGuide

Diagnosis 3 In The Write it out. Keeping a journal is a great way to work through the stress and emotional ups and down of having a child with CHD. It is also a great place for making notes about questions you’d like to ask your doctors and information that you learn at your appointments. Prepare for your child’s first appointments. If you didn’t do it while your son or daughter was in the hospital, make an appointment with your child’s primary pediatrician and local cardiologists when you get home from the hospital. Again, be sure you have selected a pediatrician who has experience in caring for children with CHD, who understands the need for lifelong specialized care and who is willing to work with your cardiologist. Before your child’s first appointment, send any necessary medical records to the pediatrician so that he or she can better understand your child’s condition and procedures. You can ask the pediatrician’s office staff if they are able to get the records for you or ask the hospital to send them. Remember, your child has CHD but will also need routine care. Go to all well-baby and well-child visits recommended by your child’s doctors. Write down any questions that you have before your appointments and don’t be afraid to ask for clarification. You can track your child’s appointments, medications and growth using the forms in this Mended Little HeartGuide. 1 General Information 2 Prenatal Hospital 4 Living With CHD 5 Forms 65


Mended Little HeartGuide
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