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Mended Little HeartGuide

Introduction Contents SECTION Connect with others who have been in the hospital with a child. Talk with people who have been through similar experiences. This will help you express your feelings and concerns, ask questions and better understand some of the emotions you are experiencing. Ask the social worker or your child’s medical team what support resources are available at your hospital or in your area. Ask questions until you understand. Don’t ever think that a question is stupid. Keep asking until you truly understand the answer. Doctors and nurses would rather have you ask questions than not understand what is happening. Record questions and answers using the Question and Answer form in this Mended Little HeartGuide. About My Child’s Heart Table of Ask for a conference if you feel very confused about your child’s status. If you believe you are getting conflicting opinions and reports, you can ask for a conference of the medical professionals who are treating your child to get information from all of them at once. This will help you get a unified opinion about how your child is doing and what the plan is for him or her. Don’t be afraid to ask for a hospital tour, even if you have already had one. Understanding where everything is in the hospital can help you feel much less lost and confused. There may be facilities for you to do laundry, get a snack, use the computer and even just relax. Go To 52


Mended Little HeartGuide
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