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Mended Little HeartGuide

Diagnosis 3 In The Part 4: Living With CHD ▪▪ What About Siblings? ...................67 ▪▪ Your Child’s Nutritional Needs ............68 • Nutrition During Infancy .68 • Nutrition During Childhood . 69 • Heart-Healthy Nutrition for Life . 70 ▪▪ Exercise for Patients With Congenital Heart Disease . . . . . . . . . . . . . . . . . . . . . . 71 ▪▪ Neurodevelopmental Issues in Children With CHD . 72 ▪▪ Congenital Heart Disease: A Lifelong Journey ..74 • Empowering Your Child to Become a Healthy Adult .74 • Transition Checklist for Parents and Primary Caregivers . 75 ▪▪ The Financial Impact of CHD on Families .76 ▪▪ Building Positive Self Esteem in Children With CHD . 78 ▪▪ Frequently Asked Questions ...81 Part 5: Forms ▪▪ Creating a Binder to Stay Organized .........85 ▪▪ My Child’s Doctors ......................86 ▪▪ Medications ...........................86 ▪▪ Other Specialists and Resources ...........86 ▪▪ Appointment Log ......................86 ▪▪ Growth Tracking ....................86 ▪▪ Feeding My Child ......................87 ▪▪ Tests and Procedures ..................87 ▪▪ Development and Education ...................87 ▪▪ Transitioning to Adult CHD Care (For Your Child) .87 ▪▪ Emergency Plan ...................87 ▪▪ Letter to Family and Friends ........87 ▪▪ Questions for Doctors .................87 ▪▪ Notes .........................87 All Mended Little HeartGuide text, graphics, images, Web site design, and other content Copyright ©2015, The Mended Hearts, Inc. and Mended Little Hearts, ALL RIGHTS RESERVED. Permission is granted to electronically copy and print in hard copy this Guide and its forms for individual use only. Any other use of Mended Little HeartGuide materials, including reproduction for purposes other than noted above, modification, distribution or republication without prior written permission of the Mended Hearts, Inc. and Mended Little Hearts is strictly prohibited. Note to Reader: There is often discussion and confusion about the terms “congenital heart defect” and “congenital heart disease” because they are used interchangeably, and some people strongly prefer one over the other. For the purposes of this Mended Little HeartGuide, “congenital heart defect” is used when referring to the birth defect and “congenital heart disease” is used when referring to the lifelong condition of a child has who was born with a congenital heart defect. Both are abbreviated CHD, so when reading this educational material, please use the version that best fits the context. Mended Little Hearts 8150 N. Central Expwy. M2248 Dallas, TX 75206 1-888-432-7899 (1-888-HEART99) info@mendedlittlehearts.org www.mendedlittlehearts.org 1 General Information 2 Prenatal Hospital 4 Living With CHD 5 Forms 5


Mended Little HeartGuide
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