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Mended Little HeartGuide

SECTION About My Child’s Heart ▪▪ About My Child’s Heart ..................6 ▪▪ Diagram of My Child’s Heart ...............7 ▪▪ Diagram of a Healthy Heart ...............7 Part 1: General Information ▪▪ Connecting With Others .................9 ▪▪ Taking Care of Yourself .................10 ▪▪ Things You May Be Feeling .................12 • Grief . 13 • Fear . 16 • Guilt . 18 • Anger . 19 • Confusion . 20 • A Note About Post-Traumatic Stress Disorder . 21 ▪▪ Empowering Parents to Make Health Care Choices . 22 ▪▪ Navigating Insurance ...........................24 ▪▪ Common Tests and Procedures ...........27 ▪▪ Valves and Devices for CHD Patients .30 ▪▪ Glossary of Common CHD Terms and Abbreviations . 32 Part 2: Prenatal Diagnosis ▪▪ Things You May Be Feeling After a Prenatal Diagnosis .37 • Lack of “Normal Pregnancy Feelings” .37 • Guilt . 37 • Fear . 38 • Disappointment . 38 • Envy . 38 ▪▪ During Pregnancy ...............40 ▪▪ Preparing for Birth ......................42 ▪▪ After Delivery .....................43 ▪▪ Common Prenatal Tests and Procedures .44 ▪▪ Frequently Asked Prenatal Questions ........46 Part 3: In the Hospital ▪▪ Packing List for the Hospital Stay ..........49 ▪▪ Things You May Be Feeling in the Hospital .50 • Uncertainty .50 • Disconnectedness . 50 • Confusion . 50 • Surprise . 50 • Fear . 50 ▪▪ Tips for Emotional Wellness During a Hospital Stay . 51 ▪▪ Tips from Parents for Managing a Hospital Stay . 53 ▪▪ Get Involved with Your Child .............54 ▪▪ Financial Considerations During the Hospital Stay . 58 ▪▪ Transitioning From Hospital to Home . . . . . . . . . . 62 Contents About My Child’s Heart Table of Introduction Contents Go To 4


Mended Little HeartGuide
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