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Mended Little HeartGuide

1 General Information 2 Prenatal Dear Friend, If your child was diagnosed with a heart problem either before or after birth — even if he or she is older and has already undergone surgery and/or a heart procedure — you may feel like you have been thrust into a world of unknowns. There are very few guides on how to be the parent or caregiver of a child with a heart defect or heart disease. In fact, odds are, you had never heard of a congenital heart defect or congenital heart disease before your child was diagnosed. The good news is that this Mended Little HeartGuide will provide you with the information you need and help guide you to additional resources. Medical professionals and parents worked together to create the Mended Little HeartGuide, so it not only has accurate information but also empowers families to cope — and even thrive — in a world that can be frightening and difficult. This guide is a companion to the medical information you’ll receive from your child’s physicians. It provides answers to many questions you may have about caring for your child, yourself and the rest of your family. The Mended Little HeartGuide has five sections to help you, regardless of where you are in your child’s heart journey: Part 1: General information for parents and caregivers Part 2: Information to help parents and primary caregivers after their child’s prenatal CHD diagnosis Part 3: Information to help parents and caregivers while their child is in the hospital Part 4: Information to help parents and caregivers after their child comes home from the hospital Part 5: Forms to help parents keep track of information Please know that Mended Little Hearts is here for you if you need support. You are not alone. On behalf of everyone at Mended Little Hearts, we extend our heartfelt wishes to you and your family. Mended Little Hearts Diagnosis 3 In The Hospital 4 Living With CHD 5 Forms 3


Mended Little HeartGuide
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