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Mended Little HeartGuide

SECTION Things You May Be Feeling You will experience many emotions when your son or daughter is initially diagnosed with CHD, and these will continue throughout your child’s life, especially if he or she needs surgery or other heart procedures. After diagnosis, you must suddenly learn how to care for a child with special medical needs in addition to learning basic parenting skills. You have been thrust into a world of surgeries, procedures, specialists, medications, devices and medical jargon. You must also learn to accept that congenital heart disease is not only present at birth but is a lifelong condition requiring specialized care. Understandably, feelings of sadness, anger, fear, guilt and confusion are common. Although it may seem hard to imagine at times, many parents and caregivers report that raising a child with CHD has made them stronger and that they became kinder and more compassionate people after recovering from the trauma of a CHD diagnosis and/or surgeries. Many even say that having a child with CHD was a positive event in their lives. This section details some common thoughts and feelings that you may be experiencing as a parent or caregiver of a child with CHD and provides tips on the best ways to cope with those feelings. About My Child’s Heart Table of Introduction Contents Go To 12


Mended Little HeartGuide
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